Service-User Oriented Research Resources (Introductory)

Patient Engagement - What is patient engagement and why do it?

[Canadian Institutes of Health Research - CIHR]

http://www.cihr-irsc.gc.ca/e/45851.html

A brief introduction to the...

 

Partnering with citizens in research

[Patients Canada]

http://ossu.ca/wp-content/uploads/Orientation_to_patient_partners_-_pub_2016.pdf

A PowerPoint presentation describing the basics of...

 

Briefing Notes for Researchers: Public involvement in NHS, public health and social care research

[INVOLVE]

http://www.invo.org.uk/wp-content/uploads/2014/11/9938_INVOLVE_Briefing_Notes_WEB.pdf

An introduction to public involvement in research put together by the U.K.'s National Health Service (NHS) INVOLVE...

 

Statement of Consumer and Community Involvement in Health and Medical Research

[National Health and Medical Research Council - NHMRC]

https://www.nhmrc.gov.au/_files_nhmrc/file/publications/16298_nhmrc_-_statement_on_consumer_and_community_involvement_in_health_and_medical_research-accessible.pdf

An introduction to public involvement in research put together by the Australian Government's National Health and Medical Research Council (NHMRC)...

 

Engaging Patients in Patient Safety: A Canadian Guide (Chapter 1 - Engaging Patients as Partners)

[Canadian Patient Safety Institute - CPSI]

http://www.patientsafetyinstitute.ca/en/toolsResources/Patient-Engagement-in-Patient-Safety-Guide/Documents/Engaging%20patients%20as%20partners.pdf

A high-quality introduction to...


Service-User Oriented Research Resources (Funding & Compensation)

Budgeting for Involvement: Practical advice on budgeting for actively involving the public in research studies

[INVOLVE]

http://www.invo.org.uk/wp-content/uploads/2013/07/INVOLVEMHRNBudgeting09Jul2013.pdf

Advice on remuneration and compensation for...


Engaging Patients in Patient Safety: A Canadian Guide (Chapter 3 - Partners at Organizational and System Levels)

[Canadian Patient Safety Institute - CPSI]

http://www.patientsafetyinstitute.ca/en/toolsResources/Patient-Engagement-in-Patient-Safety-Guide/Documents/Partners%20at%20organizational%20and%20system%20levels.pdf

An in-depth guide prepared by the Canadian Patient Safety Institute...

Service-User Oriented Research Resources (In-Depth)


Service-User Oriented Research Resources (Writing)

Writing About Biomedical and Health Research in Plain English: A guide for authors

[Access to Understanding]

http://www.access2understanding.org/wp-content/uploads/2014/11/Access-to-Understanding-writing-guidance_v1.pdf

A guide to writing about biomedical topics using plain English...


Engaging Patients in Patient Safety: A Canadian Guide (Chapter 4 - Evaluating Patient Engagement)

[Canadian Patient Safety Institute - CPSI]

http://www.patientsafetyinstitute.ca/en/toolsResources/Patient-Engagement-in-Patient-Safety-Guide/Documents/Engaging%20Patients%20in%20Patient%20Safety.pdf

A high-quality introduction to...

Service-User Oriented Research Resources (Evaluation)


Patient and Family Involvement: A discussion of co-led redesign of healthcare services

http://jopm.jmir.org/2018/1/e5/

(2018) Outlines the features of...

 

Emerging Guidelines for Patient Engagement in Research

https://www.sciencedirect.com/science/article/pii/S1098301516340505

(2017) Describes the emerging guidelines for patient engagement in research...

 

Evaluating Patient and Stakeholder Engagement in Research: Moving from theory to practice

https://www.futuremedicine.com/doi/pdf/10.2217/cer.14.79

(2015) Describes...

 

Patient Engagement in Research: A systematic review

https://link.springer.com/article/10.1186/1472-6963-14-89

(2014) Describes...

Service-User Oriented Research Resources (Open-Access Articles)